Real stories
From those who have had lived experience of CJD
If you have an experience of your own that you’d be happy to share, please contact us.
We have raised £1 million so far
Thanks to our generous supporters, this is a great start, but much more is needed to continue vital research and help to make a viable treatment. With your help, we can reach our target.
“I pray that other families will not have to face a loss like ours”
My brother will always be in my heart. He is missed so much. For the future, I pray that other families will not have to face a loss like ours. It gives me comfort knowing so much amazing work is taking place in the Prion Unit in London to find a treatment for this terrible disease.
“CJD took my mum so quickly and brutally”
This is why our family wanted to support the Cure CJD Campaign – to try and get vital research into this disease, a disease so many of the medical community never knowingly encounter. I never want another family to go through what we did – watching someone slip away at such a rapid speed with no one understanding why, and not being able to offer support to the family while their whole world implodes.
“Mark was a remarkable, vital man”
We could take on anything together, but when we received the diagnosis, “I’m sorry, it is sporadic CJD”, those few words floored us. It was devastating. I knew what CJD was. The most amazing man I have ever known would die in a matter of weeks; at 56 years old it was about thirty years too early. And there was nothing we could do. Nothing. When we received the diagnosis I said to Mark, “We don’t deserve this”. Mark replied, “Nobody deserves CJD”. He was right.
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